Monday, July 13, 2015

FIVE things I want the world to know about living with Hashimoto's:

There are times people feel misunderstood, or feel like they can’t always express how they REALLY feel to others. Sometimes we deliberately shut people out it’s because we think persons won’t fully understand what we’re going through. This post is really just scratching the surface on some of the emotions I go through living with thyroid dysfunction, but I hope it educates and inspires:

5 things I want the world to know about living with thyroid disease: 

1. It hurts when you call me lazy… and question my sleeping habits. 
Yes I JUST woke up at 8 o’clock. I also JUST went to sleep at 3 a.m. AND my alarm JUST woke me up at 6:30 a.m. to take my thyroid meds, so this is JUST my “post taking meds” nap. Get over it. The debilitating exhaustion which accompanies thyroid disease is something that I don’t think I can ever get used to. No matter how much I sleep I am always tired. Ironically, even with being so exhausted, at night it’s difficult to turn my mind off and fall asleep. Persons who are hypothyroid in particular can have very low energy levels, so there are days when we just can’t get things done as quickly as you’d like us to. But bear with me, I make up for it on days when I feel better!

2. I have mirrors at my house
It also really hurts when you call me fat! Trust me on this, I REALLY don’t need you to remind me about my weight every single time you see me. If you are on any kind of weight journey you know all too well, that sinking feeling you get, when you finally get into that skirt you haven’t worn for months and the first person you meet when you go out comments on your stomach.  Stop it people, I saw my stomach in the mirror before I left home, I know what it looks like. Be mindful also that not every overweight person you come across overeats! Some of us even exercise too, imagine that! The same is also true for persons with overactive thyroids. They may actually eat quite a lot and be unable to gain weight. The eating disorder jokes are uncalled for. Stop the body shaming, please.

3. Yes, this is a fake smile today

Day 1: Friend: Hey, how’s it goin?     Me: My whole body hurts today. 
Day 2: Friend: Hey, what’s up?     Me: I'm so nauseated this morning.
Day 3: Friend: Hi, how you today?  Me: Exhausted. Wish I could go back to bed.
Day 4: Friend: How you doin?     Me: I feel depressed. My body still hurts, today.
Day 5: Friend: Heya. How you?  Me: My mind is racing, it’s overwhelming!

No one wants to be that person! But the fact is there are weeks when EVERYDAY is a challenge for me! There are times when I may be dealing with multiple symptoms at once. It’s overwhelming. And I imagine that it may be overwhelming to other people as well (after all, who likes a Negative Nelly). So I pretend. Which is often easier than having to deal with any weird comments or give explanations as to why I’m always feeling sick. Or feeling like I’m always burdening other people with how I’m doing. Soooo what is my response most days: “I’M FINE.” Am I saying this is the ideal way to approach it? Maybe not. What I am saying is, be patient if your friend or loved one doesn’t always want to share how they feel right away, sometimes we are still trying to come to terms with the magnitude of all of this. A lot of times we downplay the way we feel not just because we don’t want to turn other people off, but for our own sanity (coping mechanism much?)

4. I’m scared sometimes
This is kind of scary at times. It’s a lot to deal with, the unpredictability of it all. Will I develop more autoimmune diseases? What if the other half of my thyroid goes bad? Am I going to be able to beat this? Am I doing enough to get better? Of course I put a brave face on, but there are times when I do have fears and concerns, and I do wonder about everything that’s going on with me. If my body is able to handle all of this, if my MIND is able to deal with it. 

5. I miss you. I miss me too. 
I speak for myself when I say that living with Hashimoto’s has dramatically changed the way I interact with society. I’ve always been a bit of a homebody, but I’ve become even more of a recluse, because there are times I really just don’t have the energy, I really don’t feel like subjecting anyone to my moods, or I really am feeling awful, so I’d rather just avoid social contact. So sadly, I’ve lost some friends along the way and I miss some of them tremendously. I vaguely remember the person I was before hashimoto’s disease, and I honestly have not felt like myself in a very long time. 
I miss that person too. 

July is THYROID DISEASE AWARENESS MONTH at Just Bee You! So be sure to check back here during this month for more posts on the thyroid. You can also follow Just Bee You on Facebook and Instagram (@justbeeyoutiful) for more posts.


  1. Having a hormonal disorder, I can soooooo relate to this hun, especially the fatigue. I'm always tired, and the fact that I have a long commute doesn't help either, sadly ppl don't understand. I may not have your disorder, but I have many of the symptoms you do girl, so you're not alone...

    1. Sigh. Then they hit you with the line: "Everybody gets tired". You are right the symptoms are very similar! I was actually told I had hormonal imbalance for a long time before it was discovered to be Hashimoto's. Might be something to ask your doc about at your next visit. Thanks for the kind words always Nells! meh favourite stalkee =)

  2. Awwww sis. We hear you and we're here for you. Hope to see you soon... Even if it's just to curl up on the beds and make fun of Sekhmet lol. Xoxoxo!!!!!

    1. *hugs* Thanks sis. I WILL be coming before it gets too cold. Had my sights set on labour day, but I doh want to miss election day! #needtostainmyfinger How is Sekhmet, I'm sure she has turned the level of conceit for us peasants up a few more notches... lol